It is almost time to celebrate some of our favorite holidays, so I figured it was time to post an update! The longer we are home, the less details I feel comfortable sharing, so the blog has obviously suffered, but I do still desire to keep posting. :)
Things have been rolling along here. We are several months into our school year, the baby is eager to start crawling (we are even more eager for her to sleep through the night! Ha!), and we are looking forward to some of our favorite foods at holiday dinners! Yum!
Little Man has been doing fairly well over the last few months. He has adjusted well to having a baby in the house and is working hard on his schooling. His favorite foods are still pizza, salsa, and macaroni. In fact, if he could eat those three things for every meal for the rest of his life, I don't think I'd ever hear a peep out of him! He also loves his toy cars and watching movies. Little Sister is probably more amused by him than anyone else in the house. He can get her laughing in no time and he loves to tell me he is babysitting her for me. If you've ever spent time with the two of them together, you know he isn't satisfied unless he is stroking her arm or hugging her. He loves his baby!
Now that we have been home almost two and a half years (can you believe that?!), I feel like we have finally settled into a good routine. If you had told me three years ago that it would take this long for us to figure each other out, I would have balked at you. "Surely we have loved him and fought for him this long, we will go through a transition period and then all will be well!" Oh how I laugh at my pre-adoption self. I could never have imagined how deep the veins of trauma run or how fear courses through his body, triggered by the smallest incidents. One of the things that is so interesting for me is to see how others perceive his behavior and emotional state. The hubs and I can look at him and almost see a checklist of how he is processing things, knowing he is swimming in fear or anxiety, while someone else can say, "Oh look how happy he is right now!" I'm sure all parents can do this with their children, as we can also do the same for Big and Little Sister (ever look at your kid and just KNOW a meltdown/joy/sadness/etc. is coming?), but it is far more noticeable in our minds with him because his outward expression is often the exact opposite of his internal state. While our friends know how to best relate to him, strangers and acquaintances often unknowingly send him into a spiral, asking for hugs and saying he's so cute they'd like to "take him home", and a host of other interactions with typical families that now cause me to inwardly cringe.
We have learned how to navigate his triggers (when we can predict them) and handle the fallout afterward. Another thing that has been different from my pre-adoption mindset is how long trauma lasts in the heart of a young child. All the experts warned us that early childhood trauma has long lasting, and many times permanent, effects on a child, but seeing it played out is far different then reading it in a book. For example, we know holidays (and any family gathering, no matter how short) are a HUGE trigger for him. Because the winter holidays fall so close together each year, he doesn't have time to recover between each one before the next begins. It typically takes us into February before we can get him regulated back into a consistent emotional state.
Physically, he is doing well. He has not grown much, but he has not lost any weight either- we are happy about that! Actually, in recent weeks, he tested positive for an infection that he has had since his time in the orphanage, so we are currently treating that. We are hopeful that once that is taken care of, he will be able to eat and grow more easily. He primarily uses his wheelchair, although he does ask to walk occasionally. When we first came home we pushed and pushed for him to walk, and now we realize that a wheelchair gives him more freedom and mobility than walking ever will. Human nature drives our desire for him to walk, I think, but we have seen and accepted that his wheelchair is a much better option for him 99% of the time. He is faster, it doesn't cause him pain, and it is MUCH easier for him. Now, we celebrate that he is MOBILE, because three years ago that was not going to be his future, and now he can get around almost anywhere he wants. His legs are becoming tighter, although without the ability to do a MRI, we are unable to know if that is a result of a tethered cord. That tightness causes him pain when he wears his braces to walk and also when wearing his sleeping braces, so it is somewhat of a cycle- it hurts, so he doesn't want to use them, which causes the tightness to continue, which makes it hurt to use his equipment.
One thing that has been very sobering for me this fall, is thinking that he would have been transferred by now. He wouldn't be in an orphanage, but rather an adult mental institution where he would have lived out his days strapped to a crib. Most kids don't survive their first year after a transfer. His life is so different now, not only compared to what his life was in the orphanage, but especially compared to what was coming with a transfer to an institution. When we brought him home, he could only speak about 5-10 simple words in his native language. Now, he is able to speak full sentences and carry on simple conversations. School would have not been an option for him there, but now, he can identify some letters and sounds, count, write, color, sing songs, listen to stories, and all kinds of other things that we really take for granted daily. Instead of spending the rest of his days forgotten in a room somewhere, he gets to play outside on the trampoline with his sister, go to birthday parties, open Christmas presents, make friends, and tell us knock-knock jokes. When we left the orphanage, we had to provide an outfit for them to change him into, because he didn't even own the clothes on his back. Now, there are more of his clothes and toys strewn all over his house than we can keep up with! Sometimes when I'm stressed out at the condition of the playroom, I chuckle at what an enormous blessing this mess actually is. Perspective, people, perspective. We are always swamped with doctors appointments and surprise medical changes, but goodness! He has PARENTS to drive him to loving doctors and therapists who dote on him, instead of being dropped off at a hospital all alone for necessary procedures. This year, he actually sat down with me and helped write a Christmas wish list. This is the same boy who for months would not even tell us if he was hungry or thirsty, because in the orphanage, those needs are not met, unless it is designated meal time. I teared up the first time he ever asked for a drink! The contrast of his life now to what was before often takes my breath away. I hope I never lose that wonder.
This holiday season, I implore you to make a difference in the life of a child. I'm not saying that everyone is called to adopt, but there are hundreds of ways that YOU can make a real difference. When you drop off coats and gloves at the homeless shelter, remember that there may be kids in that difficult situation- pack a toy too. Set your Amazon account to donate to Reece's Rainbow. Sponsor your local crisis pregnancy center. Donate to a random family's account at a reputable adoption agency. Offer to babysit for a foster family so mom and dad can take a short break. Bring some crayons and coloring books to a children's hospital. Take a soon-to-be adoptive mom out for coffee and listen as she describes her anguish in waiting for her child. Slip some cash under the door of a single mom, or better yet, hand her the cash and offer to babysit while she takes care of some Christmas shopping. And of course, I can't close without asking that you pray. Pray for the children around the world who need families. Pray that moms and dads would rise up and welcome them home. Pray specifically about what God would have you do in regards to the orphan crisis- donate, support, pray, adopt. Is it possible that YOUR child is lying in a crib somewhere and you don't yet know he or she exists? How will we know if we do not ask the One who sees them? May we all find a way this Christmas to show a child the love of a Father. After all, every child has a dream to belong and be loved.
Tuesday, November 22, 2016
Saturday, July 16, 2016
I Wish
Whew! I think I start off every blog post now saying it has been much longer than I intended since the last post. Ha! Since my last post, we have added Baby #3 to the family and we are head over heels in love with her. As it is with any new addition, our family is in transition as we adjust to another little sweetie. She is absolutely precious, but struggles with severe acid reflux like her older sister. Her reflux has caused several very scary episodes and because her doctors found some unusual things on an x-ray we are also currently undergoing tests to determine if there are other problems in her belly. While it is always difficult to transition from 2 to 3 kids, this little lady has been consistent in her life and kept us on our toes, just as she did with her pregnancy. We have experienced great fear and stress in the (almost) 3 short months that she has been home, but also far more joy than we could have ever imagined! I tell her every day how incredibly happy I am that she is here.
Also, for the sake of saving all of us some confusion, I'm going to change the kiddos' code names on here. I don't refer to the kids by name on the blog for safety and privacy reasons, but the nickname "Baby Girl" will become confusing for obvious reasons. So in order of birth, the kids' new blog names will be: Little Man, Big Sister, and Little Sister.
I try to keep the focus of this blog on adoption, as that is its intended purpose. We have almost 2 years of being adoptive parents under our belts and WOW! It has been quite the journey! We did hours and hours worth of training before his adoption, but nothing quite matches real life experience. :) I'm sure all of my adoptive parent friends are chuckling to themselves at this point! I think that all of the training in the world can't truly prepare you for parenting a child who has endured so much trauma in the early years. Even though Little Man turned 3 on our pick up trip, those short, formative years have permanent effects on the developing brain. Since I don't have any real updates to give on Little Man or spiritual lessons the Lord has taught me specifically regarding adoption, I thought for this post, I would focus on things I wish I had known before adoption, in the hopes that it will help any other families adopting.
**For clarity, I should explain that I use the word trauma as a blanket term that can include many different things. The most common things meant when someone uses the words "childhood trauma" are things like: exposure to significant stress and/or damaging substances in utero, experiencing abuse (verbal, physical, sexual, etc.), neglect, abandonment, witnessing abuse, etc. These things cause permanent physical brain changes, many of which can be seen on various scans, as well as emotional and behavioral problems.**
Here we go:
~ I wish I had known that love doesn't cure everything. Now I knew this before we adopted, but I didn't really KNOW it. There is a part of parents that truly believes that food, attention, safety and a lot of love will bring these kiddos from hard places to complete healing. Now, those things do make a TREMENDOUS difference, but we are learning that complete correction of all the problems that arise from trauma is not likely a reality. With time, responses to this trauma can lessen, but most of the families I've followed (who are many more years into this journey than we are) seem to agree that these kids will always filter every part of their lives through this trauma. They can sometimes learn to change their reactions, but it never completely goes away. For example, Little Man has experienced hunger and starvation. Because of those effects on his brain, food is a huge issue. He bounces from using it as a control mechanism and refusing to eat or drink for days, to narrowing in on it so much that he talks about what the next meal is for hours. We read of an extremely wealthy man who experienced true hunger as a very poor child. When he grew into a man and became unimaginably wealthy, he still carried a candy bar in his pocket every single day. The fear of being hungry again was so engrained in his mind, that he carried that candy bar with him so he would always know he had at least one more meal to eat.
~ I wish I had known that attachment is fluid and not set in stone. Every part of our training focused so much on attachment, we assumed that once he attached to us and we attached to him, everything would be smooth sailing. Instead, we have found that his attachment to us is not constant. It waxes and wanes as situations in life change, and also for no reason at all. It is a constant push-pull in his mind- push my parents away, pull them close. The focus in training is always on creating an environment that encourages the child to attach to the parent. I don't remember anything talking about how the parent must attach to the child and that attachment for them is fluid as well. When your child hits you, screams at you, intentionally vomits on you, or various other things, it can be difficult to remind yourself that it is all coming from trauma and not pure hatred of you, especially when you have done everything in your power for him or her. (We aren't talking typical childhood tantrums here.) God gave parents a beautiful biological bond when they have babies. All of those hormones and biological responses are His blessing so you don't lose your mind when waking up for the 100th time at night with a newborn, picking up a screaming toddler off the floor of a public place, or grounding your teenager for rebellious behavior. But with adoption, those hormones and biological responses are not there. You are effectively parenting a complete stranger at first. Over time your mind begins to change and your feelings follow (for most parents, but this is not always the case). Even so, for most parents with trauma-affected kids, it remains a very intentional process to maintain that attachment to their child.
~ I wish I had known that people would brush things off as "typical childhood" tantrums and such when you confided in them. It is extremely hurtful and frustrating. I liken it to a parent saying their child is deathly allergic to peanuts and someone responds saying, "Oh, I have a picky eater too." Maddening. Ha! I do often ask friends their opinions on developmental things, especially if they have boys, and I greatly appreciate their honest feedback. If you are about to walk this path of adoption, be prepared to at some point vent to someone who will blow off your concerns. BUT also give them grace, because it is likely they just don't know what to say.
~ I wish I had known that kids from hard places often don't believe they deserve love or peace, so they create chaos in their new homes in order to maintain that belief. They often believe they only deserve bad things because that is all the world has handed them, so they intentionally do wrong in order to receive what they think they deserve (ie- punishment).
~ I wish I had known that a traumatized toddler's manipulation skills could easily outwit a top-ranking politician.
~ I wish I had known how I would grieve every time we got a new, unexpected medical diagnosis. And how I would cycle repeatedly through the stages of grief when we see obvious signs that various emotional and mental delays are likely permanent.
~ I wish I had known how incredibly difficult this is on a biological child who is not quite old enough to completely understand . And how very sad and proud I would be when he does something inappropriate, and Big Sister responds sadly with, "It's ok. Brother just doesn't understand."
~ I wish I had known that sensory issues and anxiety are far more crippling than being in a wheelchair.
~ I wish I had known that Little Man's complex worldview would drastically change our lives and how we are able to plan and navigate events as well as daily life.
There are a lot of things I wish I had known that would have better prepared me to be Little Man's mom. But then again, if I had known just how difficult the last two years would be, I might have been too scared to take the leap into adoption. All of that being said, there are a lot of really AMAZING things that I wish I had known as well. I typed out all of the difficult things to offer a real, but very small, picture of what one journey has looked like. Each family's journey is so different, there is no way to predict how each story will unfold. But with all my heart, I believe that we cannot truly appreciate the beautiful view at the top of the mountain if we have not experienced the pain of crawling through the valleys first. Here are some other things that I wish I had known both before the adoption and still have to remind myself of on our really dark days:
~ I wish I had known how desperately I would need Jesus every minute of every day. It is impossible to parent a child well without Him, but it is absolutely impossible to even survive parenting a trauma baby without Him. The days and weeks that I attempt to do this on my own are miserable- for everyone. Not only do I need Him to help me through each day with Little Man and the girls, but this adoption has taught me so much of my own rescue story. I see very clearly the parallel between Little Man's adoption and daily walk with him and my own salvation and the journey with Jesus in the years since. It is quite the humbling experience, which I often need more of.
~ I wish I had known how I would sit wide-eyed in wonder when I compare pictures of Little Man in the early days to now. He has grown and changed so much. I watched a video just the other day of him in the orphanage and it was amazing to see him not even really be able to sit up. When we brought him home at 3 years old, he had never taken a single bite of solid food. When we picked him up, he could say maybe 10 words in his native language, but within a few months, he was speaking an entirely new language at a 3 year old level. His progress has been absolutely incredible.
~ I wish I had known how much joy would overwhelm me when we could give Little Man new experiences that he never had and would never have if he remained in an orphanage. The look on his face when he saw bubbles for the first time on our first trip is something I will treasure forever. When he came home, he not only had a mom and dad for the first time, but he arrived at the airport to an entire extended family and friends who had been praying for him for years. I'm tearing up now just thinking about how we can even call love and family a new experience. How tragic that this is a reality for so many! He came home to a whole room of toys just for him. Even to this day, he still is overly excited when he sees me pull a new shirt out of his closet and take the tag off. He can't wrap his mind around it being only for him and not communal property. He has seen the beach for the first time. He has petted a dog for the first time, and even has two of his own! He has experienced complete independence in a wheelchair for the first time. He has colored and painted. He has experienced new foods, and the childhood thrill of being covered in a spaghetti dinner. He has learned new things in homeschool, while in his first country he probably would have been denied any education due to his disabilities. He has gone from being terrified of cold ice cream to begging for its sweetness at least weekly. He has changed from screaming in fear of being in a bath tub for the first time, to asking to splash in the bubbles daily. I could think of a million other things, but we'd be here all day...
~ I wish I had known how my heart would fill when we get rare glimpses of the real boy underneath all of the trauma and defense mechanisms. To most, he is a very smiley and happy kid, but in reality, most of his smiles and laughs are forced- I'd estimate at least 90% of the time. The Hubs actually showed me a picture he took of Little Man a few weeks ago and it took my breath away. I didn't recognize him at first with his simple, genuine expression on his face. He looked so innocent and unharmed by the world. I cried. The picture he took one second later was of Little Man laughing- a cute picture, but a very fake expression and forced laugh. It was the first time I realized that because of sensory overload, anxiety or whatever the case may be, even his facial expressions rarely relax. He so wants to protect himself that being happy has become a defense mechanism. A few weeks ago, we were at parents' night at VBS. As we observed him from the corner of the room, the Hubs and I both whispered to each other at almost the exact same time, "He's smiling, but he looks like he is about to burst into tears." It's painful for us to watch him as he struggles to balance his internal feelings and life, and to know that he's so good at hiding his feelings, others can't read him. However, a few days ago we roasted marshmallows to make smores and as we all sat in a circle and enjoyed the treat, we again whispered to each other, "He looks so content and peaceful." We cling to those rare minutes that we see him truly peaceful.
~ I wish I had known that Big Sister would change with adoption as well. She has the ability to be far more compassionate and protective than many adults (even though she is still a child and obviously experiences typical sibling strife).
~ I wish I had known that adoption would give me and the Hubby just one more thing in common. There is something about struggling together that truly bonds you in ways that good times can't.
~ I wish I had known that when Little Man reaches a milestone, it feels like we have conquered the world! It took us months and months for him to recognize the letter A consistently, but what a celebration that was when he succeeded!
~ I wish I had known that adoption would make me a completely different person. I don't recognize the person I was before, and I wouldn't want to be her again.
I could think of dozens of more things I wish I had known- both good and bad, but in reality, it has taken me two days just to type these out while juggling three small kids! :) There have been some very hard days and months since Little Man came home, but there have been some absolutely wonderful ones too. There is always such a fine line to walk when posting things like this. I would never ever want to discourage a family from adopting. There are far too many children in DESPERATE need of families, not to mention the Holy God's command to care for orphans- and I certainly can't argue with that. But I do want to give a small glimpse into reality, while also protecting Little Man's privacy and dignity. We are often asked if we would do this again. And the answer is always YES. Even on the very worst day, YES. Little Man is completely our son and God had been preparing us to be his family from the moment it was determined he needed one. Now, for many months we have said we didn't think we would have the strength to ever do it a second time. But now that we have had some peaceful days to balance out so many of the difficult, I think we would say that we could do it again in the future. (Now before my phone starts ringing- No, we do not have any current plans to adopt again. I am simply saying that if God calls us to it again in the future, we'd at least be obedient enough to hear Him out.) ;) We have seen Little Man blossom into a completely different child, and if we had the ability to provide that for another, it seems beyond selfish to not do so. On the bad days, I hear the gentle whisper, "Greater love hath no man than this, that a man lay down his life for his friends." And while this is taking the verse out of context, the Father is indeed teaching me how to lay down my life daily so that another might live.
Also, for the sake of saving all of us some confusion, I'm going to change the kiddos' code names on here. I don't refer to the kids by name on the blog for safety and privacy reasons, but the nickname "Baby Girl" will become confusing for obvious reasons. So in order of birth, the kids' new blog names will be: Little Man, Big Sister, and Little Sister.
I try to keep the focus of this blog on adoption, as that is its intended purpose. We have almost 2 years of being adoptive parents under our belts and WOW! It has been quite the journey! We did hours and hours worth of training before his adoption, but nothing quite matches real life experience. :) I'm sure all of my adoptive parent friends are chuckling to themselves at this point! I think that all of the training in the world can't truly prepare you for parenting a child who has endured so much trauma in the early years. Even though Little Man turned 3 on our pick up trip, those short, formative years have permanent effects on the developing brain. Since I don't have any real updates to give on Little Man or spiritual lessons the Lord has taught me specifically regarding adoption, I thought for this post, I would focus on things I wish I had known before adoption, in the hopes that it will help any other families adopting.
**For clarity, I should explain that I use the word trauma as a blanket term that can include many different things. The most common things meant when someone uses the words "childhood trauma" are things like: exposure to significant stress and/or damaging substances in utero, experiencing abuse (verbal, physical, sexual, etc.), neglect, abandonment, witnessing abuse, etc. These things cause permanent physical brain changes, many of which can be seen on various scans, as well as emotional and behavioral problems.**
Here we go:
~ I wish I had known that love doesn't cure everything. Now I knew this before we adopted, but I didn't really KNOW it. There is a part of parents that truly believes that food, attention, safety and a lot of love will bring these kiddos from hard places to complete healing. Now, those things do make a TREMENDOUS difference, but we are learning that complete correction of all the problems that arise from trauma is not likely a reality. With time, responses to this trauma can lessen, but most of the families I've followed (who are many more years into this journey than we are) seem to agree that these kids will always filter every part of their lives through this trauma. They can sometimes learn to change their reactions, but it never completely goes away. For example, Little Man has experienced hunger and starvation. Because of those effects on his brain, food is a huge issue. He bounces from using it as a control mechanism and refusing to eat or drink for days, to narrowing in on it so much that he talks about what the next meal is for hours. We read of an extremely wealthy man who experienced true hunger as a very poor child. When he grew into a man and became unimaginably wealthy, he still carried a candy bar in his pocket every single day. The fear of being hungry again was so engrained in his mind, that he carried that candy bar with him so he would always know he had at least one more meal to eat.
~ I wish I had known that attachment is fluid and not set in stone. Every part of our training focused so much on attachment, we assumed that once he attached to us and we attached to him, everything would be smooth sailing. Instead, we have found that his attachment to us is not constant. It waxes and wanes as situations in life change, and also for no reason at all. It is a constant push-pull in his mind- push my parents away, pull them close. The focus in training is always on creating an environment that encourages the child to attach to the parent. I don't remember anything talking about how the parent must attach to the child and that attachment for them is fluid as well. When your child hits you, screams at you, intentionally vomits on you, or various other things, it can be difficult to remind yourself that it is all coming from trauma and not pure hatred of you, especially when you have done everything in your power for him or her. (We aren't talking typical childhood tantrums here.) God gave parents a beautiful biological bond when they have babies. All of those hormones and biological responses are His blessing so you don't lose your mind when waking up for the 100th time at night with a newborn, picking up a screaming toddler off the floor of a public place, or grounding your teenager for rebellious behavior. But with adoption, those hormones and biological responses are not there. You are effectively parenting a complete stranger at first. Over time your mind begins to change and your feelings follow (for most parents, but this is not always the case). Even so, for most parents with trauma-affected kids, it remains a very intentional process to maintain that attachment to their child.
~ I wish I had known that people would brush things off as "typical childhood" tantrums and such when you confided in them. It is extremely hurtful and frustrating. I liken it to a parent saying their child is deathly allergic to peanuts and someone responds saying, "Oh, I have a picky eater too." Maddening. Ha! I do often ask friends their opinions on developmental things, especially if they have boys, and I greatly appreciate their honest feedback. If you are about to walk this path of adoption, be prepared to at some point vent to someone who will blow off your concerns. BUT also give them grace, because it is likely they just don't know what to say.
~ I wish I had known that kids from hard places often don't believe they deserve love or peace, so they create chaos in their new homes in order to maintain that belief. They often believe they only deserve bad things because that is all the world has handed them, so they intentionally do wrong in order to receive what they think they deserve (ie- punishment).
~ I wish I had known that a traumatized toddler's manipulation skills could easily outwit a top-ranking politician.
~ I wish I had known how I would grieve every time we got a new, unexpected medical diagnosis. And how I would cycle repeatedly through the stages of grief when we see obvious signs that various emotional and mental delays are likely permanent.
~ I wish I had known how incredibly difficult this is on a biological child who is not quite old enough to completely understand . And how very sad and proud I would be when he does something inappropriate, and Big Sister responds sadly with, "It's ok. Brother just doesn't understand."
~ I wish I had known that sensory issues and anxiety are far more crippling than being in a wheelchair.
~ I wish I had known that Little Man's complex worldview would drastically change our lives and how we are able to plan and navigate events as well as daily life.
There are a lot of things I wish I had known that would have better prepared me to be Little Man's mom. But then again, if I had known just how difficult the last two years would be, I might have been too scared to take the leap into adoption. All of that being said, there are a lot of really AMAZING things that I wish I had known as well. I typed out all of the difficult things to offer a real, but very small, picture of what one journey has looked like. Each family's journey is so different, there is no way to predict how each story will unfold. But with all my heart, I believe that we cannot truly appreciate the beautiful view at the top of the mountain if we have not experienced the pain of crawling through the valleys first. Here are some other things that I wish I had known both before the adoption and still have to remind myself of on our really dark days:
~ I wish I had known how desperately I would need Jesus every minute of every day. It is impossible to parent a child well without Him, but it is absolutely impossible to even survive parenting a trauma baby without Him. The days and weeks that I attempt to do this on my own are miserable- for everyone. Not only do I need Him to help me through each day with Little Man and the girls, but this adoption has taught me so much of my own rescue story. I see very clearly the parallel between Little Man's adoption and daily walk with him and my own salvation and the journey with Jesus in the years since. It is quite the humbling experience, which I often need more of.
~ I wish I had known how I would sit wide-eyed in wonder when I compare pictures of Little Man in the early days to now. He has grown and changed so much. I watched a video just the other day of him in the orphanage and it was amazing to see him not even really be able to sit up. When we brought him home at 3 years old, he had never taken a single bite of solid food. When we picked him up, he could say maybe 10 words in his native language, but within a few months, he was speaking an entirely new language at a 3 year old level. His progress has been absolutely incredible.
~ I wish I had known how much joy would overwhelm me when we could give Little Man new experiences that he never had and would never have if he remained in an orphanage. The look on his face when he saw bubbles for the first time on our first trip is something I will treasure forever. When he came home, he not only had a mom and dad for the first time, but he arrived at the airport to an entire extended family and friends who had been praying for him for years. I'm tearing up now just thinking about how we can even call love and family a new experience. How tragic that this is a reality for so many! He came home to a whole room of toys just for him. Even to this day, he still is overly excited when he sees me pull a new shirt out of his closet and take the tag off. He can't wrap his mind around it being only for him and not communal property. He has seen the beach for the first time. He has petted a dog for the first time, and even has two of his own! He has experienced complete independence in a wheelchair for the first time. He has colored and painted. He has experienced new foods, and the childhood thrill of being covered in a spaghetti dinner. He has learned new things in homeschool, while in his first country he probably would have been denied any education due to his disabilities. He has gone from being terrified of cold ice cream to begging for its sweetness at least weekly. He has changed from screaming in fear of being in a bath tub for the first time, to asking to splash in the bubbles daily. I could think of a million other things, but we'd be here all day...
~ I wish I had known how my heart would fill when we get rare glimpses of the real boy underneath all of the trauma and defense mechanisms. To most, he is a very smiley and happy kid, but in reality, most of his smiles and laughs are forced- I'd estimate at least 90% of the time. The Hubs actually showed me a picture he took of Little Man a few weeks ago and it took my breath away. I didn't recognize him at first with his simple, genuine expression on his face. He looked so innocent and unharmed by the world. I cried. The picture he took one second later was of Little Man laughing- a cute picture, but a very fake expression and forced laugh. It was the first time I realized that because of sensory overload, anxiety or whatever the case may be, even his facial expressions rarely relax. He so wants to protect himself that being happy has become a defense mechanism. A few weeks ago, we were at parents' night at VBS. As we observed him from the corner of the room, the Hubs and I both whispered to each other at almost the exact same time, "He's smiling, but he looks like he is about to burst into tears." It's painful for us to watch him as he struggles to balance his internal feelings and life, and to know that he's so good at hiding his feelings, others can't read him. However, a few days ago we roasted marshmallows to make smores and as we all sat in a circle and enjoyed the treat, we again whispered to each other, "He looks so content and peaceful." We cling to those rare minutes that we see him truly peaceful.
~ I wish I had known that Big Sister would change with adoption as well. She has the ability to be far more compassionate and protective than many adults (even though she is still a child and obviously experiences typical sibling strife).
~ I wish I had known that adoption would give me and the Hubby just one more thing in common. There is something about struggling together that truly bonds you in ways that good times can't.
~ I wish I had known that when Little Man reaches a milestone, it feels like we have conquered the world! It took us months and months for him to recognize the letter A consistently, but what a celebration that was when he succeeded!
~ I wish I had known that adoption would make me a completely different person. I don't recognize the person I was before, and I wouldn't want to be her again.
I could think of dozens of more things I wish I had known- both good and bad, but in reality, it has taken me two days just to type these out while juggling three small kids! :) There have been some very hard days and months since Little Man came home, but there have been some absolutely wonderful ones too. There is always such a fine line to walk when posting things like this. I would never ever want to discourage a family from adopting. There are far too many children in DESPERATE need of families, not to mention the Holy God's command to care for orphans- and I certainly can't argue with that. But I do want to give a small glimpse into reality, while also protecting Little Man's privacy and dignity. We are often asked if we would do this again. And the answer is always YES. Even on the very worst day, YES. Little Man is completely our son and God had been preparing us to be his family from the moment it was determined he needed one. Now, for many months we have said we didn't think we would have the strength to ever do it a second time. But now that we have had some peaceful days to balance out so many of the difficult, I think we would say that we could do it again in the future. (Now before my phone starts ringing- No, we do not have any current plans to adopt again. I am simply saying that if God calls us to it again in the future, we'd at least be obedient enough to hear Him out.) ;) We have seen Little Man blossom into a completely different child, and if we had the ability to provide that for another, it seems beyond selfish to not do so. On the bad days, I hear the gentle whisper, "Greater love hath no man than this, that a man lay down his life for his friends." And while this is taking the verse out of context, the Father is indeed teaching me how to lay down my life daily so that another might live.
Thursday, March 24, 2016
The Walk Through Holy Week
Wow! It has certainly been a long time since I last posted. Things have been quite insane around here. In fact, I would probably say this has been the most complicated time of our married lives thus far. We have been challenged with months of me on bed rest, multiple medical complications, severe emotional struggles with Little Man, and significant stress in many other areas. BUT I am so incredibly grateful when I look over and see the man still holding my hand as we have navigated this difficult time together. God certainly knew what we would both need in a spouse when these tidal waves crash. I have said ever since I met him, that the Hubs shows me more of who Jesus is than anyone else. I am grateful for the man he is. Over the last months, God has also taught me the importance of having a foundation in Him, so that when the waves come over your head, repeatedly, you can feel the security of the Rock underneath you, despite your flailing arms and filling lungs.
This pregnancy has not been anything like we had expected, or hoped it to be. I've been on some form of bed rest for the majority of the last 8 months, with more complications than I can remember. When I was first taken off my feet, I thought this would be a great season of reading and writing, two of my favorite things, but instead I have found my mind to be so cloudy, I can barely focus long enough to do either. I'm sure this is a result of pregnancy hormones, the effects of a heart not pumping correctly, and various medications that have kept this Baby inside. I have tried to sit down and update the blog multiple times over the last few months, but nothing seemed to flow.
Little Man has struggled significantly over the last few months. We knew the holiday season would be extremely stressful for him. Last year he wasn't able to calm down from the holidays until about February. This year, we survived the holiday hustle and bustle, only for me to immediately be put on strict bed rest and start needing help with the kids. We had some amazing friends rally around us and help take care of everything, but unfortunately, Little Man just can't handle any change in schedule or people he sees regularly, so he spiraled downhill emotionally and behaviorally fairly quickly. In the past week we have just started to see him eat semi-regularly again. His past trauma and current anxiety touches every aspect of his life so I won't go into all of the details because it is simply too much to list, but we are extremely grateful to finally see some progress after many hard months. We had to reduce his schedule to almost nothing, with very few variables (doctor appointments, visits with friends, church activities, etc.), but it has made a tremendous difference. We have slowly been able to introduce small things again, but are fully prepared to go back to full-blown cocooning after the baby is born.
During this time of difficulties, God has repeatedly brought to mind a specific story. The little I have been able to focus enough to read over the last few months has been significantly centered around Abraham, Isaac, and Jacob and their wives. One very tiny story in these chapters has been enough for me to ponder over several months, and has brought significant peace to my weary soul. You see, this baby wiggling around in my womb is in many ways the fulfillment of a special promise to me. This child has been the answer to very unique prayers that were offered before conception (not simply prayers to have another baby). That positive pregnancy test was confirmation about many things the Lord had been speaking to my heart about.
Genesis 15:
9 So the Lord said to him, “Bring me a heifer, a goat and a ram, each three years old, along with a dove and a young pigeon.”
10 Abram brought all these to him, cut them in two and arranged the halves opposite each other; the birds, however, he did not cut in half. 11 Then birds of prey came down on the carcasses, but Abram drove them away.
12 As the sun was setting, Abram fell into a deep sleep, and a thick and dreadful darkness came over him. 13 Then the Lord said to him, “Know for certain that for four hundred years your descendants will be strangers in a country not their own and that they will be enslaved and mistreated there. 14 But I will punish the nation they serve as slaves, and afterward they will come out with great possessions. 15 You, however, will go to your ancestors in peace and be buried at a good old age. 16 In the fourth generation your descendants will come back here, for the sin of the Amorites has not yet reached its full measure.”
17 When the sun had set and darkness had fallen, a smoking firepot with a blazing torch appeared and passed between the pieces. 18 On that day the Lord made a covenant with Abram...
Basically what has happened is this: God has just promised an heir to Abraham that will come from his own body (not Eliezer of his household as he had previously planned upon not having children). Abraham believes Him and it is "credited to him as righteousness." From here, God requires a covenant, so Abraham gathers up the animals and prepares them. Imagine now what that would have been like. God has made this beautiful and specific promise to Abraham, and now he spends the whole day on cloud nine preparing his act of worship before this mighty Elohim Creator God who as Jehovah also desires this deep, fulfilling personal relationship with him. So Abraham is thrilled with this promise of a positive pregnancy test, if you will. He sets up the sacrifice in a way that symbolizes a serious covenant. Many times in those days, if men were to enter into a solemn agreement with one another, animals would be cut in half and separated. The men would then walk through the carcasses in agreement- the halved bodies a solemn reminder of the seriousness of breaking this covenant. Abraham waits to for God to appear, but he suddenly falls into "a deep sleep, and a thick and dreadful darkness came over him." He is to some degree unconscious or at the very least not himself, and now trapped in horrific darkness, only to be told devastating news by Yahweh. These very descendants he has been promised will suffer a terrible fate- 400 years of slavery in a foreign country. The only silver lining is that they will return to this land of inheritance and with many possessions.
Now after hearing this dreadful news, a smoking firepot with a blazing torch, signifying God's holiness, righteousness, and judgment, appear and pass between the carcasses. Abraham is just a witness to this event. Instead of partaking in this covenant, God "signed on the dotted line" alone. He proves to Abraham in this moment that he is not needed to fulfill God's promise. The Father is His own oath. What an amazing realization! We see here God's ultimate power in mastering the present and the future. We humans are simply not needed to fulfill anything He has promised to accomplish. In seeing this, just as Abraham did, we realize that He alone is worthy of all the praise due His Name.
Throughout this pregnancy, the Father has brought this story to mind many, many times. Each time we have come close to losing the baby, or delivering significantly early, even in the stress, there has been the quiet whisper in my heart that everything will be ok, regardless of what happens in this pregnancy, birth, and life of this child. Not because of anything that I or my doctor can do, but because He. is. God. This is not to say that He promises that this baby is guaranteed anything, but rather that HE will always have ALL the power. In life. In death. In slavery. In freedom.
Today is a rather significant day in Jewish and Christian faith. I do realize that Passover is technically next month due to the lunar calendar, but you try explaining how that can be so out of order in the Holy Week to two 4 year olds. ;) So tonight, our little family will sit down around the table and celebrate this special occasion. Now, we have never experienced Passover with anyone outside of these walls, so it will probably be a puny attempt in comparison to those who have years of tradition under their belts. We are just hoping that the lamb is edible this year. ;)
I have to admit, that when we attempted this last year for the first time, it was probably my favorite holiday of the year. There is something incredibly holy about reflecting on the first Passover (when the angel of death passed over the Israelites in Egypt), God's faithfulness over all the generations, and then the solemn realization of the depth of Christ's last meal before He endured the next day. I think many times as Christians, we focus so much on the fact that "Sunday is coming" (and hallelujah that the resurrection came!), that we downplay the significance of this horrific night and following day. As Christ tasted the bitter herbs at Passover reminding everyone of the bitterness of slavery in Egypt, His soul must have groaned at the bitterness He would soon partake of. We see the unleavened bread and remember the haste of the Israelites packing to leave their captivity, but as He broke it for His disciples, I wonder if he flinched in anticipation of the whip against His holy back.
This year, I also think of this story of Abraham and how it correlates to Passover and the crucifixion. It is very similar, instead this time, it is Christ's broken body that is the covenant. As Abraham observed the carcasses on the ground, we survey the torn flesh of our Savior- His body broken for us. And just like Abraham, we are mere witnesses. The covenant is signed only by God. Nothing Abraham did solidified his promised inheritance, just as we are unable to secure our heavenly inheritance in and of ourselves. It is only through the covenant of Jesus that it is guaranteed.
I enjoy pondering Abraham's experience during this pregnancy, as it reminds me of God's faithfulness. But I am in complete awe when I survey a covenant that is completely one-sided, and one that is so secure that it holds the eternal fate of my soul.
Holy Week is vital. We cannot celebrate the glory of Resurrection Sunday without kneeling in the pit of the brokenness that led to it. May we taste the bitterness of the bloody sacrifice required on our behalf before we look to the glory of Sunday morning.
But hallelujah.
Sunday IS coming!
This pregnancy has not been anything like we had expected, or hoped it to be. I've been on some form of bed rest for the majority of the last 8 months, with more complications than I can remember. When I was first taken off my feet, I thought this would be a great season of reading and writing, two of my favorite things, but instead I have found my mind to be so cloudy, I can barely focus long enough to do either. I'm sure this is a result of pregnancy hormones, the effects of a heart not pumping correctly, and various medications that have kept this Baby inside. I have tried to sit down and update the blog multiple times over the last few months, but nothing seemed to flow.
Little Man has struggled significantly over the last few months. We knew the holiday season would be extremely stressful for him. Last year he wasn't able to calm down from the holidays until about February. This year, we survived the holiday hustle and bustle, only for me to immediately be put on strict bed rest and start needing help with the kids. We had some amazing friends rally around us and help take care of everything, but unfortunately, Little Man just can't handle any change in schedule or people he sees regularly, so he spiraled downhill emotionally and behaviorally fairly quickly. In the past week we have just started to see him eat semi-regularly again. His past trauma and current anxiety touches every aspect of his life so I won't go into all of the details because it is simply too much to list, but we are extremely grateful to finally see some progress after many hard months. We had to reduce his schedule to almost nothing, with very few variables (doctor appointments, visits with friends, church activities, etc.), but it has made a tremendous difference. We have slowly been able to introduce small things again, but are fully prepared to go back to full-blown cocooning after the baby is born.
During this time of difficulties, God has repeatedly brought to mind a specific story. The little I have been able to focus enough to read over the last few months has been significantly centered around Abraham, Isaac, and Jacob and their wives. One very tiny story in these chapters has been enough for me to ponder over several months, and has brought significant peace to my weary soul. You see, this baby wiggling around in my womb is in many ways the fulfillment of a special promise to me. This child has been the answer to very unique prayers that were offered before conception (not simply prayers to have another baby). That positive pregnancy test was confirmation about many things the Lord had been speaking to my heart about.
Genesis 15:
9 So the Lord said to him, “Bring me a heifer, a goat and a ram, each three years old, along with a dove and a young pigeon.”
10 Abram brought all these to him, cut them in two and arranged the halves opposite each other; the birds, however, he did not cut in half. 11 Then birds of prey came down on the carcasses, but Abram drove them away.
12 As the sun was setting, Abram fell into a deep sleep, and a thick and dreadful darkness came over him. 13 Then the Lord said to him, “Know for certain that for four hundred years your descendants will be strangers in a country not their own and that they will be enslaved and mistreated there. 14 But I will punish the nation they serve as slaves, and afterward they will come out with great possessions. 15 You, however, will go to your ancestors in peace and be buried at a good old age. 16 In the fourth generation your descendants will come back here, for the sin of the Amorites has not yet reached its full measure.”
17 When the sun had set and darkness had fallen, a smoking firepot with a blazing torch appeared and passed between the pieces. 18 On that day the Lord made a covenant with Abram...
Basically what has happened is this: God has just promised an heir to Abraham that will come from his own body (not Eliezer of his household as he had previously planned upon not having children). Abraham believes Him and it is "credited to him as righteousness." From here, God requires a covenant, so Abraham gathers up the animals and prepares them. Imagine now what that would have been like. God has made this beautiful and specific promise to Abraham, and now he spends the whole day on cloud nine preparing his act of worship before this mighty Elohim Creator God who as Jehovah also desires this deep, fulfilling personal relationship with him. So Abraham is thrilled with this promise of a positive pregnancy test, if you will. He sets up the sacrifice in a way that symbolizes a serious covenant. Many times in those days, if men were to enter into a solemn agreement with one another, animals would be cut in half and separated. The men would then walk through the carcasses in agreement- the halved bodies a solemn reminder of the seriousness of breaking this covenant. Abraham waits to for God to appear, but he suddenly falls into "a deep sleep, and a thick and dreadful darkness came over him." He is to some degree unconscious or at the very least not himself, and now trapped in horrific darkness, only to be told devastating news by Yahweh. These very descendants he has been promised will suffer a terrible fate- 400 years of slavery in a foreign country. The only silver lining is that they will return to this land of inheritance and with many possessions.
Now after hearing this dreadful news, a smoking firepot with a blazing torch, signifying God's holiness, righteousness, and judgment, appear and pass between the carcasses. Abraham is just a witness to this event. Instead of partaking in this covenant, God "signed on the dotted line" alone. He proves to Abraham in this moment that he is not needed to fulfill God's promise. The Father is His own oath. What an amazing realization! We see here God's ultimate power in mastering the present and the future. We humans are simply not needed to fulfill anything He has promised to accomplish. In seeing this, just as Abraham did, we realize that He alone is worthy of all the praise due His Name.
Throughout this pregnancy, the Father has brought this story to mind many, many times. Each time we have come close to losing the baby, or delivering significantly early, even in the stress, there has been the quiet whisper in my heart that everything will be ok, regardless of what happens in this pregnancy, birth, and life of this child. Not because of anything that I or my doctor can do, but because He. is. God. This is not to say that He promises that this baby is guaranteed anything, but rather that HE will always have ALL the power. In life. In death. In slavery. In freedom.
Today is a rather significant day in Jewish and Christian faith. I do realize that Passover is technically next month due to the lunar calendar, but you try explaining how that can be so out of order in the Holy Week to two 4 year olds. ;) So tonight, our little family will sit down around the table and celebrate this special occasion. Now, we have never experienced Passover with anyone outside of these walls, so it will probably be a puny attempt in comparison to those who have years of tradition under their belts. We are just hoping that the lamb is edible this year. ;)
I have to admit, that when we attempted this last year for the first time, it was probably my favorite holiday of the year. There is something incredibly holy about reflecting on the first Passover (when the angel of death passed over the Israelites in Egypt), God's faithfulness over all the generations, and then the solemn realization of the depth of Christ's last meal before He endured the next day. I think many times as Christians, we focus so much on the fact that "Sunday is coming" (and hallelujah that the resurrection came!), that we downplay the significance of this horrific night and following day. As Christ tasted the bitter herbs at Passover reminding everyone of the bitterness of slavery in Egypt, His soul must have groaned at the bitterness He would soon partake of. We see the unleavened bread and remember the haste of the Israelites packing to leave their captivity, but as He broke it for His disciples, I wonder if he flinched in anticipation of the whip against His holy back.
This year, I also think of this story of Abraham and how it correlates to Passover and the crucifixion. It is very similar, instead this time, it is Christ's broken body that is the covenant. As Abraham observed the carcasses on the ground, we survey the torn flesh of our Savior- His body broken for us. And just like Abraham, we are mere witnesses. The covenant is signed only by God. Nothing Abraham did solidified his promised inheritance, just as we are unable to secure our heavenly inheritance in and of ourselves. It is only through the covenant of Jesus that it is guaranteed.
I enjoy pondering Abraham's experience during this pregnancy, as it reminds me of God's faithfulness. But I am in complete awe when I survey a covenant that is completely one-sided, and one that is so secure that it holds the eternal fate of my soul.
Holy Week is vital. We cannot celebrate the glory of Resurrection Sunday without kneeling in the pit of the brokenness that led to it. May we taste the bitterness of the bloody sacrifice required on our behalf before we look to the glory of Sunday morning.
But hallelujah.
Sunday IS coming!
Wednesday, October 21, 2015
You're a Good, Good Father
Whew! What a whirlwind these last few months have been! We've had birthdays, 1 year gotcha anniversary, surgery, and now we can add pregnancy to the list! While we wanted to share our good news immediately, I knew I didn't want people fussing over me during Little Man's surgery, so we decided to keep it to ourselves for a while. His surgery went as expected and he has healed up nicely. We hope to begin to see significant improvement in Little Man's weight in the coming months.
While I typically use this blog to write out the things God is teaching us through life as adoptive parents, it seems that He has new lessons for us to learn and it feels appropriate to share some of that here.
When we began talking and praying about growing our family several months ago, we agreed that while we would love to have a new baby to love on, we were content (and plenty busy!) with the two He had already given to us. Another child would simply be an added joy to our family, so we prayed sincerely that God would only allow what He saw best. We were thrilled when we saw that He indeed gave us the desire of our hearts and a new little was coming our way.
The pregnancy progressed as well as can be expected. There was more morning sickness and exhaustion than I experienced with Baby Girl, but I counted it as a blessing for the reminder of the little life growing inside of me, because let's be honest, when this is child #3, you're doing good to remember at some point during the day that you're pregnant while being distracted by the other two kids! Not at all like the constant awareness of a first child. ;)
We told the kids, friends, and family our good news at Baby Girl's birthday party. I was happy that we had managed to keep the secret so well, judging by the complete shock of everyone there! Unfortunately, the next night, joy quickly turned to fear.
As I pulled onto the street driving to the ER that night, a familiar song came onto the radio. - -
When I was a young teenager, I started having frequent and severe migraines behind my eye. To rule out more serious problems, my doctor scheduled an MRI. I was extremely nervous as the test started, and you have to remain completely still- impossible to do when you are trembling from nerves (and cold! Why is it so cold in there?!) They had given me headphones, and just as the test started a song by MercyMe came on:
"Word of God speak
Would You pour down like rain
Washing my eyes to see
Your majesty
While I typically use this blog to write out the things God is teaching us through life as adoptive parents, it seems that He has new lessons for us to learn and it feels appropriate to share some of that here.
When we began talking and praying about growing our family several months ago, we agreed that while we would love to have a new baby to love on, we were content (and plenty busy!) with the two He had already given to us. Another child would simply be an added joy to our family, so we prayed sincerely that God would only allow what He saw best. We were thrilled when we saw that He indeed gave us the desire of our hearts and a new little was coming our way.
The pregnancy progressed as well as can be expected. There was more morning sickness and exhaustion than I experienced with Baby Girl, but I counted it as a blessing for the reminder of the little life growing inside of me, because let's be honest, when this is child #3, you're doing good to remember at some point during the day that you're pregnant while being distracted by the other two kids! Not at all like the constant awareness of a first child. ;)
We told the kids, friends, and family our good news at Baby Girl's birthday party. I was happy that we had managed to keep the secret so well, judging by the complete shock of everyone there! Unfortunately, the next night, joy quickly turned to fear.
As I pulled onto the street driving to the ER that night, a familiar song came onto the radio. - -
When I was a young teenager, I started having frequent and severe migraines behind my eye. To rule out more serious problems, my doctor scheduled an MRI. I was extremely nervous as the test started, and you have to remain completely still- impossible to do when you are trembling from nerves (and cold! Why is it so cold in there?!) They had given me headphones, and just as the test started a song by MercyMe came on:
"Word of God speak
Would You pour down like rain
Washing my eyes to see
Your majesty
To be still and know
That You're in this place
Please let me stay and rest
In Your holiness
Word of God speak"
The trembling stopped and I was able to be still for the rest of the MRI. I should not have been surprised that God would use that same song on this night to calm my fear, knowing it would instantly remind me of His faithfulness and nearness over all of these years. I drove the rest of the way in complete peace, knowing that regardless of what happened, He will never leave my side. A visit to the ER and a doctor's appointment the next day showed that our little baby was strong and healthy, but that the placenta had started to tear away and I was bleeding between the placenta and wall of the uterus.
A week and a half of bed rest has proved to at least stop the tear from progressing, but it is still there. The big, bold words "Threatened Pregnancy" still at the top of my chart. For now, I am still on bed rest, hoping the tear will heal itself. There are a host of risks related to this, most notably, death of the baby and hemorrhaging for me, not an easy thing to think about when I'm already so far along- the baby the size of my palm. Each time I feel the pain start again or see the stark reminder of how quickly things could change, I have to throw myself into the arms of this Father. He loves me. He loves my family. And He loves this baby. Baby Girl and Little Man have memorized Psalm 139:14 "I am fearfully and wonderfully made." They recite it sometimes throughout the day, a reminder to their little hearts that God has always known them-- and a loud reminder to me that this baby is also formed under the fingerprints of this same God.
After my appointment with my OB where she told me what was happening, I drove home praying that He would remind me that He is GOOD. I know that He may choose to take this child from my womb. But I know that even in the darkest days, in the deepest grief, He is good. He hasn't changed. He never will. There is no way I could read this blog, the story of our lives, and come to any other conclusion.
He reminded me of that same chapter Baby Girl and Little Man love to quote:
13 For you created my inmost being;
you knit me together in my mother’s womb.
14 I praise you because I am fearfully and wonderfully made;
your works are wonderful,
I know that full well.
15 My frame was not hidden from you
when I was made in the secret place,
when I was woven together in the depths of the earth.
16 Your eyes saw my unformed body;
all the days ordained for me were written in your book
before one of them came to be.
17 How precious to me are your thoughts, God!
I smiled at the reminder that only He can knit together in the secret place. He knows the number of days this baby will kick and wriggle, and I will rejoice over every single one. Even with the reminder of Elohim the strong Creator God, I asked again that He would remind me that no matter what, He is good. For surely, if this baby was ripped from me before ever being cradled in my arms, I would be tempted to doubt His goodness.
And literally that moment another song came on the radio. Only I didn't know this one. Go ahead and listen to what I heard (or what I think is a better version of it anyway): https://www.youtube.com/watch?v=NjEYtaD-Ywg
I sobbed for the rest of the drive. Not for fear, but at the overwhelming reality of His nearness. His listening to my desperate pleas. His love. His goodness.
That You're in this place
Please let me stay and rest
In Your holiness
Word of God speak"
The trembling stopped and I was able to be still for the rest of the MRI. I should not have been surprised that God would use that same song on this night to calm my fear, knowing it would instantly remind me of His faithfulness and nearness over all of these years. I drove the rest of the way in complete peace, knowing that regardless of what happened, He will never leave my side. A visit to the ER and a doctor's appointment the next day showed that our little baby was strong and healthy, but that the placenta had started to tear away and I was bleeding between the placenta and wall of the uterus.
A week and a half of bed rest has proved to at least stop the tear from progressing, but it is still there. The big, bold words "Threatened Pregnancy" still at the top of my chart. For now, I am still on bed rest, hoping the tear will heal itself. There are a host of risks related to this, most notably, death of the baby and hemorrhaging for me, not an easy thing to think about when I'm already so far along- the baby the size of my palm. Each time I feel the pain start again or see the stark reminder of how quickly things could change, I have to throw myself into the arms of this Father. He loves me. He loves my family. And He loves this baby. Baby Girl and Little Man have memorized Psalm 139:14 "I am fearfully and wonderfully made." They recite it sometimes throughout the day, a reminder to their little hearts that God has always known them-- and a loud reminder to me that this baby is also formed under the fingerprints of this same God.
After my appointment with my OB where she told me what was happening, I drove home praying that He would remind me that He is GOOD. I know that He may choose to take this child from my womb. But I know that even in the darkest days, in the deepest grief, He is good. He hasn't changed. He never will. There is no way I could read this blog, the story of our lives, and come to any other conclusion.
He reminded me of that same chapter Baby Girl and Little Man love to quote:
13 For you created my inmost being;
you knit me together in my mother’s womb.
14 I praise you because I am fearfully and wonderfully made;
your works are wonderful,
I know that full well.
15 My frame was not hidden from you
when I was made in the secret place,
when I was woven together in the depths of the earth.
16 Your eyes saw my unformed body;
all the days ordained for me were written in your book
before one of them came to be.
17 How precious to me are your thoughts, God!
I smiled at the reminder that only He can knit together in the secret place. He knows the number of days this baby will kick and wriggle, and I will rejoice over every single one. Even with the reminder of Elohim the strong Creator God, I asked again that He would remind me that no matter what, He is good. For surely, if this baby was ripped from me before ever being cradled in my arms, I would be tempted to doubt His goodness.
And literally that moment another song came on the radio. Only I didn't know this one. Go ahead and listen to what I heard (or what I think is a better version of it anyway): https://www.youtube.com/watch?v=NjEYtaD-Ywg
I sobbed for the rest of the drive. Not for fear, but at the overwhelming reality of His nearness. His listening to my desperate pleas. His love. His goodness.
Tuesday, September 22, 2015
No Matter What
How is it already the end of September?! The individual days of the past few months have dragged, but the weeks and months have flown by so quickly, I can barely keep track of what day it is. I am hopeful that the weather will change soon!
Little Man's birthday has come and gone. He was thrilled and confused at just how much celebration there was in honor of his life. He could not believe the stack of presents that his friends brought were just for him. It was great to see him so happy and surrounded by people that have loved him almost as long as we have.
A few days later, Little Man received his first wheelchair. Words cannot express how much that chair has changed his life. He has been able to be almost completely independent for the first time in his entire life. His face beamed for the whole first week he had it. It also offered him dignity that he has not had up until now. Instead of scooting around at people's feet, he is now eye-level with his peers and able to go where he pleases. We are incredibly thankful that he is finally strong enough to be able to have a wheelchair that he can maneuver on his own and the difference it has made for him.
Those are some of the things we have been up to since I posted last. Unfortunately, Little Man's weight has not improved, and so we are in a position that having a feeding tube surgically placed is our only option at this point. Seeing the diagnosis "failure to thrive" has been very difficult for me. I saw it frequently on patient charts in nursing school, but now having tried our absolute best for the past year to get him to gain weight, and know that we have still failed in that mission is incredibly disheartening. In many ways, it has been a very silent struggle in our home.
While Little Man looks very "normal" from the outside, only those who are intimately involved in our lives really know the whole story. The emotional scars of adoption and all of the trauma associated with the past manifest themselves in different ways in different children. For Little Man, a part of his daily life is extreme anxiety. It is not something an average person would recognize. In fact, most adoption specialists say that it is not even recognizable to people who frequently interact with adopted kids- it takes a trained eye or someone who lives with the child. We are forever thankful for the close friends and family who have rallied around us in the past year and have been a source of refuge for us as we learn to navigate these tumultuous waters, for while they don't always see firsthand the daily effects, they do believe our crazy stories and actively seek to support and comfort us. In our eyes, they are angels in human flesh.
While anxiety is not the only daily hurdle we tackle, we feel that it is best to limit our discussions about our struggles with a select few in order to protect Little Man's dignity. I think most parents would agree that posting things about their child that seem cute or even naughty for the world to see is not in the child's best future interest. (Think how it would feel to know there are potty training pictures of yourself floating around on the internet, or stories written about every naughty thing you did as a child! Yikes!) This is true for Little Man, except at an even more extreme level. Our struggles as parents are not ours to broadcast because they are not just our struggles- they are his too. Our hope is that as an adult, Little Man will be able to read these stories and know that we told the truth of our lives, while maintaining his privacy and dignity.
Anxiety is certainly not the only thing we are navigating on a daily basis, but possibly the easiest way to combine all of the issues into an easily recognizable word. I joked with my parents last night that I had NO idea what being a special needs parent actually meant a year ago. I remember thinking when Baby Girl was an infant that her severe acid reflux and insanely fast teething (seriously- 11 teeth by her first birthday!) was a difficult hurdle- now I laugh at that person I was. I had no idea just how complicated it is to juggle multiple doctor appointments every single week, much less keeping all of those different therapists, doctors, and specialists on the same page. God has truly blessed us with a core group of friends that have helped us keep our sanity as we were thrown into this crazy world of special needs adoption! It is an amazing view when we step back and survey our life around us. I believe we have truly experienced what Christ wanted for His body- a group of people who love each other more than themselves and are willing to lay down their own lives and comfort to support each other. On the days that I am too tired and emotionally exhausted to even pray for our own situation, I know there are people who are storming the Throne Room on our behalf. It is a very humbling experience.
I don't say all of those things to say that life is all doom and gloom. The opposite is quite true! There are pizza picnics and movie nights in the living room, play time with friends, weekly special Saturday breakfasts as a family, trips to visit family, ballet class, Sunday night dinners with special friends, and all sorts of fun adventures each week. (I had to think really hard to be able to list some that don't revolve around food! Ha! If our family is involved, it is likely that there is good food there too!) While special needs certainly affect every single aspect of our lives, it simply adds extra steps to each activity, it does not in any way remove the joy of life. Even now knowing that Little Man's needs are far more extensive than anyone could have predicted a year and a half ago, we'd still fight to bring him home all the same if we had to do it again. We appreciate the good days so much more now that we have trekked through the low valleys!
This week will present new challenges for our family as Little Man will be undergoing surgery to have a feeding tube placed in his stomach on Thursday. We are hoping the surgeon will also be able to do the planned procedure that will help prevent Little Man from suffering from reflux and intentional vomiting. Unfortunately, all of the trauma of his past causes him to refuse many meals, has prevented him from eating an acceptable amount when he does eat, and even when he does, he often has so much anxiety that he vomits it all up. This has become an insurmountable problem because he was already so severely underweight when we picked him up from the orphanage. In his year home, despite our very best efforts, we have only been able to get him to gain 2 pounds. At just over 4 years old, he weighs only 21 pounds. We have tried everything else imaginable, and now all of our medical specialists agree that this is our only option. This feeding tube will allow us to feed him throughout the day, in addition to what he will consume orally, as well as hook him up to a pump at night so that he also gets those extra calories when he would otherwise just be sleeping. If the procedures go as planned, he will also no longer be able to throw up all of these desperately important calories.
We appreciate your specific prayers that the surgery will go as planned and that all of his extra risk factors will not be an issue. He is especially at risk for his hydrocephaly shunt becoming infected (since the end of his shunt is in his abdomen, if any of his stomach acid leaks into his abdomen, it can travel up the shunt towards his brain- which obviously is not a good thing). Please also pray for his heart to be calm and to trust that we will be there to love him through all of this. It will be extremely difficult for him to fall asleep and then wake up with extra tubes and wires all over him. We are hoping for the best, but definitely expecting and bracing for the storm we feel is coming this week.
In addition to these feeding issues, we believe his tethered cord is causing the side effects to progress rapidly. His left leg has started to pull up significantly. We can't even get close to straightening it anymore. Because of that, we are almost 100% sure that Little Man will also undergo serious spinal surgery and scoliosis surgery sometime before Christmas. We need this feeding tube to work and go smoothly so that he will be strong enough to heal from spine surgery in the coming weeks.
While we were drawn closer to the Father during the long, agonizing adoption process, it has been His faithfulness since we have been home that continues amazes us. He has continued to provide the strength, friendships, and respite care (because let's be honest, being a stay-at-home mom is hard enough without adding 100 other difficulties to it- by the end of the week, I'm beyond ready for a break from small children!). I told the Hubs just a few days ago, that I am amazed at the things I have desired for my life have changed so drastically over the years of getting to know Him better. Things that seemed important, now seem outrageously frivolous. But still there have been things that He asked me to release in order to follow the plan He had planned for me- something that was painful at times. An example being nursing school. I thought He was crazy for telling me to go to nursing school, but it turns out that I LOVED nursing, even though I always thought in the back of my mind that I'd end up being a teacher. When I laid down the opportunity to be a nurse to stay at home with Baby Girl, I thought I would never get the fulfillment of an "occupation" like I had always planned. But He knew that while I was training to be a RN, in a small town on the other side of the world, a little boy would be conceived that would need a nurse for a mommy- and one that didn't work at a job in order to take care of his daily needs at home. In the past month, I have marveled that in the small flicker of a dream I once had as a little girl, He has given me the opportunity to be a teacher to the pupils I love more than I could ever love any other student- my own children. What a FAITHFUL God He is! It has been a joy to see that in delighting in Him, He sometimes changes the desires of our heart to match His own, but sometimes, He also hands us our dreams in His own timing, and in ways that are far better than we ever could have imagined.
Because I have seen His goodness, I know that no matter what this week brings, He will continue to be faithful. He will wheel into the operating room with a sleeping little boy that He loves enough to die for. He will sit on His holy throne regardless of what fits are thrown by a terrified little boy in the recovery room. He will fold His wings over an exhausted mama sleeping on a hospital couch, who is likely sobbing over her first night spent away from her Baby Girl. He will provide stamina for a daddy learning to use a feeding tube for the first time. And He will wrap His arms around a little sister who will be spending more time away from her parents than she ever has before.
No matter what, He will be faithful and He will never leave.
Little Man's birthday has come and gone. He was thrilled and confused at just how much celebration there was in honor of his life. He could not believe the stack of presents that his friends brought were just for him. It was great to see him so happy and surrounded by people that have loved him almost as long as we have.
A few days later, Little Man received his first wheelchair. Words cannot express how much that chair has changed his life. He has been able to be almost completely independent for the first time in his entire life. His face beamed for the whole first week he had it. It also offered him dignity that he has not had up until now. Instead of scooting around at people's feet, he is now eye-level with his peers and able to go where he pleases. We are incredibly thankful that he is finally strong enough to be able to have a wheelchair that he can maneuver on his own and the difference it has made for him.
Those are some of the things we have been up to since I posted last. Unfortunately, Little Man's weight has not improved, and so we are in a position that having a feeding tube surgically placed is our only option at this point. Seeing the diagnosis "failure to thrive" has been very difficult for me. I saw it frequently on patient charts in nursing school, but now having tried our absolute best for the past year to get him to gain weight, and know that we have still failed in that mission is incredibly disheartening. In many ways, it has been a very silent struggle in our home.
While Little Man looks very "normal" from the outside, only those who are intimately involved in our lives really know the whole story. The emotional scars of adoption and all of the trauma associated with the past manifest themselves in different ways in different children. For Little Man, a part of his daily life is extreme anxiety. It is not something an average person would recognize. In fact, most adoption specialists say that it is not even recognizable to people who frequently interact with adopted kids- it takes a trained eye or someone who lives with the child. We are forever thankful for the close friends and family who have rallied around us in the past year and have been a source of refuge for us as we learn to navigate these tumultuous waters, for while they don't always see firsthand the daily effects, they do believe our crazy stories and actively seek to support and comfort us. In our eyes, they are angels in human flesh.
While anxiety is not the only daily hurdle we tackle, we feel that it is best to limit our discussions about our struggles with a select few in order to protect Little Man's dignity. I think most parents would agree that posting things about their child that seem cute or even naughty for the world to see is not in the child's best future interest. (Think how it would feel to know there are potty training pictures of yourself floating around on the internet, or stories written about every naughty thing you did as a child! Yikes!) This is true for Little Man, except at an even more extreme level. Our struggles as parents are not ours to broadcast because they are not just our struggles- they are his too. Our hope is that as an adult, Little Man will be able to read these stories and know that we told the truth of our lives, while maintaining his privacy and dignity.
Anxiety is certainly not the only thing we are navigating on a daily basis, but possibly the easiest way to combine all of the issues into an easily recognizable word. I joked with my parents last night that I had NO idea what being a special needs parent actually meant a year ago. I remember thinking when Baby Girl was an infant that her severe acid reflux and insanely fast teething (seriously- 11 teeth by her first birthday!) was a difficult hurdle- now I laugh at that person I was. I had no idea just how complicated it is to juggle multiple doctor appointments every single week, much less keeping all of those different therapists, doctors, and specialists on the same page. God has truly blessed us with a core group of friends that have helped us keep our sanity as we were thrown into this crazy world of special needs adoption! It is an amazing view when we step back and survey our life around us. I believe we have truly experienced what Christ wanted for His body- a group of people who love each other more than themselves and are willing to lay down their own lives and comfort to support each other. On the days that I am too tired and emotionally exhausted to even pray for our own situation, I know there are people who are storming the Throne Room on our behalf. It is a very humbling experience.
I don't say all of those things to say that life is all doom and gloom. The opposite is quite true! There are pizza picnics and movie nights in the living room, play time with friends, weekly special Saturday breakfasts as a family, trips to visit family, ballet class, Sunday night dinners with special friends, and all sorts of fun adventures each week. (I had to think really hard to be able to list some that don't revolve around food! Ha! If our family is involved, it is likely that there is good food there too!) While special needs certainly affect every single aspect of our lives, it simply adds extra steps to each activity, it does not in any way remove the joy of life. Even now knowing that Little Man's needs are far more extensive than anyone could have predicted a year and a half ago, we'd still fight to bring him home all the same if we had to do it again. We appreciate the good days so much more now that we have trekked through the low valleys!
This week will present new challenges for our family as Little Man will be undergoing surgery to have a feeding tube placed in his stomach on Thursday. We are hoping the surgeon will also be able to do the planned procedure that will help prevent Little Man from suffering from reflux and intentional vomiting. Unfortunately, all of the trauma of his past causes him to refuse many meals, has prevented him from eating an acceptable amount when he does eat, and even when he does, he often has so much anxiety that he vomits it all up. This has become an insurmountable problem because he was already so severely underweight when we picked him up from the orphanage. In his year home, despite our very best efforts, we have only been able to get him to gain 2 pounds. At just over 4 years old, he weighs only 21 pounds. We have tried everything else imaginable, and now all of our medical specialists agree that this is our only option. This feeding tube will allow us to feed him throughout the day, in addition to what he will consume orally, as well as hook him up to a pump at night so that he also gets those extra calories when he would otherwise just be sleeping. If the procedures go as planned, he will also no longer be able to throw up all of these desperately important calories.
We appreciate your specific prayers that the surgery will go as planned and that all of his extra risk factors will not be an issue. He is especially at risk for his hydrocephaly shunt becoming infected (since the end of his shunt is in his abdomen, if any of his stomach acid leaks into his abdomen, it can travel up the shunt towards his brain- which obviously is not a good thing). Please also pray for his heart to be calm and to trust that we will be there to love him through all of this. It will be extremely difficult for him to fall asleep and then wake up with extra tubes and wires all over him. We are hoping for the best, but definitely expecting and bracing for the storm we feel is coming this week.
In addition to these feeding issues, we believe his tethered cord is causing the side effects to progress rapidly. His left leg has started to pull up significantly. We can't even get close to straightening it anymore. Because of that, we are almost 100% sure that Little Man will also undergo serious spinal surgery and scoliosis surgery sometime before Christmas. We need this feeding tube to work and go smoothly so that he will be strong enough to heal from spine surgery in the coming weeks.
While we were drawn closer to the Father during the long, agonizing adoption process, it has been His faithfulness since we have been home that continues amazes us. He has continued to provide the strength, friendships, and respite care (because let's be honest, being a stay-at-home mom is hard enough without adding 100 other difficulties to it- by the end of the week, I'm beyond ready for a break from small children!). I told the Hubs just a few days ago, that I am amazed at the things I have desired for my life have changed so drastically over the years of getting to know Him better. Things that seemed important, now seem outrageously frivolous. But still there have been things that He asked me to release in order to follow the plan He had planned for me- something that was painful at times. An example being nursing school. I thought He was crazy for telling me to go to nursing school, but it turns out that I LOVED nursing, even though I always thought in the back of my mind that I'd end up being a teacher. When I laid down the opportunity to be a nurse to stay at home with Baby Girl, I thought I would never get the fulfillment of an "occupation" like I had always planned. But He knew that while I was training to be a RN, in a small town on the other side of the world, a little boy would be conceived that would need a nurse for a mommy- and one that didn't work at a job in order to take care of his daily needs at home. In the past month, I have marveled that in the small flicker of a dream I once had as a little girl, He has given me the opportunity to be a teacher to the pupils I love more than I could ever love any other student- my own children. What a FAITHFUL God He is! It has been a joy to see that in delighting in Him, He sometimes changes the desires of our heart to match His own, but sometimes, He also hands us our dreams in His own timing, and in ways that are far better than we ever could have imagined.
Because I have seen His goodness, I know that no matter what this week brings, He will continue to be faithful. He will wheel into the operating room with a sleeping little boy that He loves enough to die for. He will sit on His holy throne regardless of what fits are thrown by a terrified little boy in the recovery room. He will fold His wings over an exhausted mama sleeping on a hospital couch, who is likely sobbing over her first night spent away from her Baby Girl. He will provide stamina for a daddy learning to use a feeding tube for the first time. And He will wrap His arms around a little sister who will be spending more time away from her parents than she ever has before.
No matter what, He will be faithful and He will never leave.
Psalm 139
For the director of music. Of David. A psalm.
1 You have searched me, Lord,
and you know me.
2 You know when I sit and when I rise;
you perceive my thoughts from afar.
3 You discern my going out and my lying down;
you are familiar with all my ways.
4 Before a word is on my tongue
you, Lord, know it completely.
5 You hem me in behind and before,
and you lay your hand upon me.
6 Such knowledge is too wonderful for me,
too lofty for me to attain.
and you know me.
2 You know when I sit and when I rise;
you perceive my thoughts from afar.
3 You discern my going out and my lying down;
you are familiar with all my ways.
4 Before a word is on my tongue
you, Lord, know it completely.
5 You hem me in behind and before,
and you lay your hand upon me.
6 Such knowledge is too wonderful for me,
too lofty for me to attain.
7 Where can I go from your Spirit?
Where can I flee from your presence?
8 If I go up to the heavens, you are there;
if I make my bed in the depths, you are there.
9 If I rise on the wings of the dawn,
if I settle on the far side of the sea,
10 even there your hand will guide me,
your right hand will hold me fast.
11 If I say, “Surely the darkness will hide me
and the light become night around me,”
12 even the darkness will not be dark to you;
the night will shine like the day,
for darkness is as light to you.
Where can I flee from your presence?
8 If I go up to the heavens, you are there;
if I make my bed in the depths, you are there.
9 If I rise on the wings of the dawn,
if I settle on the far side of the sea,
10 even there your hand will guide me,
your right hand will hold me fast.
11 If I say, “Surely the darkness will hide me
and the light become night around me,”
12 even the darkness will not be dark to you;
the night will shine like the day,
for darkness is as light to you.
13 For you created my inmost being;
you knit me together in my mother’s womb.
14 I praise you because I am fearfully and wonderfully made;
your works are wonderful,
I know that full well.
15 My frame was not hidden from you
when I was made in the secret place,
when I was woven together in the depths of the earth.
16 Your eyes saw my unformed body;
all the days ordained for me were written in your book
before one of them came to be.
17 How precious to me are your thoughts, God!
How vast is the sum of them!
18 Were I to count them,
they would outnumber the grains of sand—
when I awake, I am still with you.
you knit me together in my mother’s womb.
14 I praise you because I am fearfully and wonderfully made;
your works are wonderful,
I know that full well.
15 My frame was not hidden from you
when I was made in the secret place,
when I was woven together in the depths of the earth.
16 Your eyes saw my unformed body;
all the days ordained for me were written in your book
before one of them came to be.
17 How precious to me are your thoughts, God!
How vast is the sum of them!
18 Were I to count them,
they would outnumber the grains of sand—
when I awake, I am still with you.
19 If only you, God, would slay the wicked!
Away from me, you who are bloodthirsty!
20 They speak of you with evil intent;
your adversaries misuse your name.
21 Do I not hate those who hate you, Lord,
and abhor those who are in rebellion against you?
22 I have nothing but hatred for them;
I count them my enemies.
23 Search me, God, and know my heart;
test me and know my anxious thoughts.
24 See if there is any offensive way in me,
and lead me in the way everlasting.
Away from me, you who are bloodthirsty!
20 They speak of you with evil intent;
your adversaries misuse your name.
21 Do I not hate those who hate you, Lord,
and abhor those who are in rebellion against you?
22 I have nothing but hatred for them;
I count them my enemies.
23 Search me, God, and know my heart;
test me and know my anxious thoughts.
24 See if there is any offensive way in me,
and lead me in the way everlasting.
Thursday, August 6, 2015
Make It Count
We are just a couple of weeks away from our one year celebration of GOTCHA Day. Can you believe it? As I've said before, it is hard to believe it has been a whole year already, but it is also hard to believe he hasn't been here all along. I am hoping that in the next few weeks, my dear husband will write a post from his perspective. :)
We are also quickly approaching his birthday! I am quite excited to be able to finally celebrate his birthday at home. His 2nd birthday was the day we asked to have his adoption file from our agency (we found out later that was his birthday). His 3rd birthday was the day after we picked him up from the orphanage. He was extremely overwhelmed, but he did eat a piece of chocolate cake and wear a birthday hat. We were thrilled to have him in our arms that year. Now, we get to have an actual party to celebrate his life, this precious year we have spent together, and look forward to what God will do in the coming year. I have been asking him what he wants for his birthday, and I am always amused with his answer: pizza, macaroni, and cake! I am both amazed and proud that when I ask what he wants for a gift, he simply starts naming friends and family he wants to share his cake with.
We are very hopeful that Little Man will also make tremendous progress participating as Baby Girl begins homeschooling this year. He is still learning shapes, colors, and letters, so he isn't quite ready for worksheets, but I know he will learn a lot by being in the room while Baby Girl starts her first year of preschool. The hope is that Little Man will learn these fundamentals as well as work on motor skills so he will be able to hold a pencil and begin school next year. He is very excited to start on the coloring pages and projects I have shown him that I have ready just for him.
It has been a busy two weeks as the Hubs has recently returned from his trip to Little Man's first country. He greatly enjoyed his time there and made some wonderful friendships. While Hubby was overseas, Little Man had a check up at a children's hospital that works specifically with children who have certain disabilities. While they were SUPER impressed with his walking, they did have some disappointing news for us. It appears that Little Man's spine has curved about 10 more degrees since our last visit around February. Before, his curve was around 40 degrees, so it only required bracing at night, but now that it is over 50 degrees, he must wear his back brace all the time and will also likely require surgery. Because his scoliosis has progressed so suddenly, they believe his spinal cord has tethered-forcing his spine to curve, which also requires surgery. Unfortunately, since his hydrocephaly shunt has metal in it, we do not feel a MRI is a safe option, so we will be unable to determine if his cord has tethered until the surgeon begins the surgery to correct the scoliosis.
So that is not news that we wanted to hear, and was honestly a surprise, even though we know with his spina bifida, it is not uncommon. In addition to those things, he has also not gained any weight. We are praying about whether to pursue further tests, or to submit to a surgery to have a feeding tube placed. If we go for a feeding tube, we will need to have that surgery done before the surgery on his spine so that he will be able to have that nutrition while recovering from surgery.
That is a lot of information for us to process, and many small, daily details and choices we are navigating that I won't bore you with here.
~
I don't think it is a surprise to anyone who knows us well that the heartbeat of our marriage, from the very beginning, has been for the nations. This past year has left us conflicted and a little confused at the Father's plan for our lives as Little Man's medical needs have become more apparent. We wholeheartedly believe that God led us specifically to Little Man, while we also believe He has a specific plan for us in missions. Right now, it is a little difficult to see how those two things will work together, as Little Man requires more and more medical intervention here at home, while our hearts long to be in his first country. I told the Hubs when he came home, that while it was very difficult to get the news of Little Man's impending surgeries while he was so far away, I believe God orchestrated it that way. I know had I not called him to tell him the news from the doctors, Hubby would have come home ready to sell the house and get back on a plane. I believe God was protecting his heart so that when he came home, he would already knew we'd have to stay here for at least some time longer.
During the adoption, long after we had committed to and met Little Man, we had hoped that God would miraculously heal Little Man, and we could in turn, all return to Eastern Europe to tell others of His glory. But as the story unfolds, it seems that is not the Father's plan after all. BUT, He has been faithful to continue to cover the four of us with His wings as we walk down this unknown path. Just a week before Hubby left for Eastern Europe, a precious couple who have given up everything to follow Jesus blessed us by coming over for dinner one night. We talked of God's work among the nations, our desires, and the medical complications hindering us from leaving. (At that point, we had no idea we were facing surgeries.) Our friend gently patted the table and said, "His plan may not make sense right now, but ten years from now, you will look back and say, 'Oh, I see what You were doing, Father.' And you will be amazed." I have replayed that in my head many times since that dinner. I am so thankful for the people God puts in our lives and the encouragement they bring. Even while overseas, Hubby recounts telling the team the news about Little Man and the tears and prayers that were offered on his behalf. A recent call from those new friends left him humbled as they continued to pray over Little Man, on the other side of the world.
I have learned many, many things in the past few years; things that have been painful to learn at times. Most of them seem so simple, it is easy to nod, whisper "Amen" and scroll along. But, time has taught me that they are not so simple that it takes away from how profound these lessons are.
The Father is good. He is so, so good to His children.
God can be trusted. I still struggle with this, but as I told the Hubs, all I have to do is re-read some of the posts on this blog, and it all comes flooding back. I can trust Him.
Adonai is faithful. Again, I am thankful for the passing of time with the Father. We have marked our trail well, so there is no doubt where we have come from and Who led us to this point.
Elohim is strong. There have been days in this journey that it has been too much to even put one foot in front of the other. Those are the days the Shepherd lifts me up, like a little lamb who continues to run astray, and carries me on the strength of His broad shoulders.
The I AM is eternal. My life is but a vapor. But He is already sitting at the table ten years from now, waiting to show me how He is orchestrating these years. And these days of doctor appointments and planning, are such very insignificant strokes in the magnificent masterpiece He is painting over all generations.
So as we take a deep breath and begin walking into these next few months and years, we are reminded that we only get so many trips around the sun. We were extremely humbled at the final whispers from the funeral of a friend's husband, "Make it count. Make it count."
Make. It. Count.
We are also quickly approaching his birthday! I am quite excited to be able to finally celebrate his birthday at home. His 2nd birthday was the day we asked to have his adoption file from our agency (we found out later that was his birthday). His 3rd birthday was the day after we picked him up from the orphanage. He was extremely overwhelmed, but he did eat a piece of chocolate cake and wear a birthday hat. We were thrilled to have him in our arms that year. Now, we get to have an actual party to celebrate his life, this precious year we have spent together, and look forward to what God will do in the coming year. I have been asking him what he wants for his birthday, and I am always amused with his answer: pizza, macaroni, and cake! I am both amazed and proud that when I ask what he wants for a gift, he simply starts naming friends and family he wants to share his cake with.
We are very hopeful that Little Man will also make tremendous progress participating as Baby Girl begins homeschooling this year. He is still learning shapes, colors, and letters, so he isn't quite ready for worksheets, but I know he will learn a lot by being in the room while Baby Girl starts her first year of preschool. The hope is that Little Man will learn these fundamentals as well as work on motor skills so he will be able to hold a pencil and begin school next year. He is very excited to start on the coloring pages and projects I have shown him that I have ready just for him.
It has been a busy two weeks as the Hubs has recently returned from his trip to Little Man's first country. He greatly enjoyed his time there and made some wonderful friendships. While Hubby was overseas, Little Man had a check up at a children's hospital that works specifically with children who have certain disabilities. While they were SUPER impressed with his walking, they did have some disappointing news for us. It appears that Little Man's spine has curved about 10 more degrees since our last visit around February. Before, his curve was around 40 degrees, so it only required bracing at night, but now that it is over 50 degrees, he must wear his back brace all the time and will also likely require surgery. Because his scoliosis has progressed so suddenly, they believe his spinal cord has tethered-forcing his spine to curve, which also requires surgery. Unfortunately, since his hydrocephaly shunt has metal in it, we do not feel a MRI is a safe option, so we will be unable to determine if his cord has tethered until the surgeon begins the surgery to correct the scoliosis.
So that is not news that we wanted to hear, and was honestly a surprise, even though we know with his spina bifida, it is not uncommon. In addition to those things, he has also not gained any weight. We are praying about whether to pursue further tests, or to submit to a surgery to have a feeding tube placed. If we go for a feeding tube, we will need to have that surgery done before the surgery on his spine so that he will be able to have that nutrition while recovering from surgery.
That is a lot of information for us to process, and many small, daily details and choices we are navigating that I won't bore you with here.
~
I don't think it is a surprise to anyone who knows us well that the heartbeat of our marriage, from the very beginning, has been for the nations. This past year has left us conflicted and a little confused at the Father's plan for our lives as Little Man's medical needs have become more apparent. We wholeheartedly believe that God led us specifically to Little Man, while we also believe He has a specific plan for us in missions. Right now, it is a little difficult to see how those two things will work together, as Little Man requires more and more medical intervention here at home, while our hearts long to be in his first country. I told the Hubs when he came home, that while it was very difficult to get the news of Little Man's impending surgeries while he was so far away, I believe God orchestrated it that way. I know had I not called him to tell him the news from the doctors, Hubby would have come home ready to sell the house and get back on a plane. I believe God was protecting his heart so that when he came home, he would already knew we'd have to stay here for at least some time longer.
During the adoption, long after we had committed to and met Little Man, we had hoped that God would miraculously heal Little Man, and we could in turn, all return to Eastern Europe to tell others of His glory. But as the story unfolds, it seems that is not the Father's plan after all. BUT, He has been faithful to continue to cover the four of us with His wings as we walk down this unknown path. Just a week before Hubby left for Eastern Europe, a precious couple who have given up everything to follow Jesus blessed us by coming over for dinner one night. We talked of God's work among the nations, our desires, and the medical complications hindering us from leaving. (At that point, we had no idea we were facing surgeries.) Our friend gently patted the table and said, "His plan may not make sense right now, but ten years from now, you will look back and say, 'Oh, I see what You were doing, Father.' And you will be amazed." I have replayed that in my head many times since that dinner. I am so thankful for the people God puts in our lives and the encouragement they bring. Even while overseas, Hubby recounts telling the team the news about Little Man and the tears and prayers that were offered on his behalf. A recent call from those new friends left him humbled as they continued to pray over Little Man, on the other side of the world.
I have learned many, many things in the past few years; things that have been painful to learn at times. Most of them seem so simple, it is easy to nod, whisper "Amen" and scroll along. But, time has taught me that they are not so simple that it takes away from how profound these lessons are.
The Father is good. He is so, so good to His children.
God can be trusted. I still struggle with this, but as I told the Hubs, all I have to do is re-read some of the posts on this blog, and it all comes flooding back. I can trust Him.
Adonai is faithful. Again, I am thankful for the passing of time with the Father. We have marked our trail well, so there is no doubt where we have come from and Who led us to this point.
Elohim is strong. There have been days in this journey that it has been too much to even put one foot in front of the other. Those are the days the Shepherd lifts me up, like a little lamb who continues to run astray, and carries me on the strength of His broad shoulders.
The I AM is eternal. My life is but a vapor. But He is already sitting at the table ten years from now, waiting to show me how He is orchestrating these years. And these days of doctor appointments and planning, are such very insignificant strokes in the magnificent masterpiece He is painting over all generations.
So as we take a deep breath and begin walking into these next few months and years, we are reminded that we only get so many trips around the sun. We were extremely humbled at the final whispers from the funeral of a friend's husband, "Make it count. Make it count."
Make. It. Count.
Tuesday, July 7, 2015
Learning to Laugh
One year ago today, Little Man's case was brought before a judge on the other side of the world, and he was legally declared our son. I think back to this time last year and I can remember the overwhelming flood of emotions- the relief that he was finally ours and no power on earth could take him away from us, and the conflicting realization that while he was ours, we were separated by an entire ocean. We then began yet another season of waiting (of unknown duration) as we anticipated being told we could return to Little Man and collect him from the orphanage. That wait was brutal, and I would like to never experience it again.
It has been quite some time since I have dedicated a blog post to an update on Little Man's medical progress, so I figured today was a good day to do that. Many have asked how he is doing, but since that simple question has so many facets, I normally respond with, "He is doing great!"
I have mentioned before just how much life changes after adoption, but goodness, I think life has changed just as much with simply adding a child with special needs to the family. Those who have sweet kiddos with complicated needs will certainly agree with me. Our weeks are FULL with medical appointments and therapy, not to mention the day to day activities that take longer because of extra complications (like getting in and out of a chair, or not being able to open doors, or the sensory overload that causes you to spiral into distress for several days, etc). It affects every single aspect of daily life.
In order to keep track of all of his specialists and procedures, I've had to put together a binder. It has already come in handy several times having all of his information together as we bounce from one appointment to another.
Little Man has made tremendous progress with physical therapy. He is able to walk independently with his walker and braces, although it take a tremendous amount of energy and concentration. Because his braces are from his toes to his armpits, it is not possible for him to wear them throughout the day since he can't really sit or crawl in them. So we limit using those to specific times that we practice walking with him. Eventually, as he gains more control and strength, those braces will go lower on his torso and hips so that he will be able to wear them throughout the day and walk as he pleases.
We have also started the paperwork to get him a wheelchair. I was amazed at how custom it will be made for his specific needs. Since his spine is curved so significantly, there will be extra support to help him stay upright in the chair, as well as extra pieces to prevent him from slipping down out of the seat. When he tested the model, he learned how to wheel himself around in a matter of seconds (literally!), so we are VERY excited to get his finished so that he will have more independence.
He also has ankle braces called AFOs that he wears during the day, and knee immobilizers (a foam brace that is strapped from the groin to his ankles to keep his knees in a straighter position) and a back brace that he wears at night.
Just finding room to store all of that equipment is sometimes a challenge! :)
We have struggled significantly to get him to gain weight. Most kids gain weight pretty quickly after coming home, but Little Man is still only 1 or 2 pounds heavier than when we got him. At almost 4 years old, 21 pounds just isn't really cutting it anymore. We are working very hard to make each bite count while also prayerfully considering a feeding tube. We hope to avoid the feeding tube at all cost as it is a surgery to insert a tube into his stomach, which will partially remain on the outside of his abdomen. Throughout the day and night, we would be able to pour high-calorie liquid directly into it to help him gain more weight. The serious concern is that he would pull it out, which would cause a lot of damage. We would greatly appreciate your prayers for Little Man to EAT without ceasing and that each calorie would add to his weight.
In addition to those things that we have been learning to balance throughout the year, several of Little Man's doctors believe he has started having partial seizures. At this point, they aren't exactly dangerous, but rather something that we are aware of and monitoring closely. Another section in our medical binder.
Several months ago, Little Man chipped his front tooth almost all the way down to the nerve. It was not only very painful, but because of his sensory issues, getting it repaired was quite traumatic. As I laid across him to help hold his arms and legs down, I had to choke back the tears. "Your life has been SO unfair. God, this is NOT fair. Why do You allow this?" I thought and prayed. There is nothing that is easy for Little Man. It seems that almost each week brings some kind of new challenge. Many people meet Little Man and remark, "You are a very lucky little boy, do you know that?" I try to respond politely, but in my heart I know "the hand he has been dealt" and what a fighter he is. There is more strength and determination in his little finger than in most adults, I think. He has been challenged in literally every aspect of life- physically, mentally, emotionally, relationally. He has known the life of an orphan and the stress of being taken from the only home he ever knew to a completely new country.
I am amazed at the little boy God has given us. There are days that our new life is all so overwhelming that I become easily frustrated, but even so, it is difficult to not see God's fingerprints on the whole thing when I take a step back to see the whole picture. We have seen His faithfulness emotionally as He gives us the rest and insight we need to parent Little Man. He has continued to provide financially for all of these extra expenses, despite the days we are overwhelmed at the numbers. He has taught us perseverance and love. He has taught Baby Girl how to love even when it is difficult. We have seen Him teach Little Man self-control and patience and love and true joy.
Did you know that Little Man didn't always like being tickled? Every time we would tickle him, he would force a laugh because that is what he assumed he was supposed to do after watching Baby Girl. But today, if we reach out and tickle his sweet neck, he will throw his head back, mouth wide open and laugh with complete abandon. What a precious picture of the transformation God has made in all of our hearts. The ability to trust our security into His hands, tilt our head back and laugh.
What a great Father we have.
It has been quite some time since I have dedicated a blog post to an update on Little Man's medical progress, so I figured today was a good day to do that. Many have asked how he is doing, but since that simple question has so many facets, I normally respond with, "He is doing great!"
I have mentioned before just how much life changes after adoption, but goodness, I think life has changed just as much with simply adding a child with special needs to the family. Those who have sweet kiddos with complicated needs will certainly agree with me. Our weeks are FULL with medical appointments and therapy, not to mention the day to day activities that take longer because of extra complications (like getting in and out of a chair, or not being able to open doors, or the sensory overload that causes you to spiral into distress for several days, etc). It affects every single aspect of daily life.
In order to keep track of all of his specialists and procedures, I've had to put together a binder. It has already come in handy several times having all of his information together as we bounce from one appointment to another.
Little Man has made tremendous progress with physical therapy. He is able to walk independently with his walker and braces, although it take a tremendous amount of energy and concentration. Because his braces are from his toes to his armpits, it is not possible for him to wear them throughout the day since he can't really sit or crawl in them. So we limit using those to specific times that we practice walking with him. Eventually, as he gains more control and strength, those braces will go lower on his torso and hips so that he will be able to wear them throughout the day and walk as he pleases.
We have also started the paperwork to get him a wheelchair. I was amazed at how custom it will be made for his specific needs. Since his spine is curved so significantly, there will be extra support to help him stay upright in the chair, as well as extra pieces to prevent him from slipping down out of the seat. When he tested the model, he learned how to wheel himself around in a matter of seconds (literally!), so we are VERY excited to get his finished so that he will have more independence.
He also has ankle braces called AFOs that he wears during the day, and knee immobilizers (a foam brace that is strapped from the groin to his ankles to keep his knees in a straighter position) and a back brace that he wears at night.
Just finding room to store all of that equipment is sometimes a challenge! :)
We have struggled significantly to get him to gain weight. Most kids gain weight pretty quickly after coming home, but Little Man is still only 1 or 2 pounds heavier than when we got him. At almost 4 years old, 21 pounds just isn't really cutting it anymore. We are working very hard to make each bite count while also prayerfully considering a feeding tube. We hope to avoid the feeding tube at all cost as it is a surgery to insert a tube into his stomach, which will partially remain on the outside of his abdomen. Throughout the day and night, we would be able to pour high-calorie liquid directly into it to help him gain more weight. The serious concern is that he would pull it out, which would cause a lot of damage. We would greatly appreciate your prayers for Little Man to EAT without ceasing and that each calorie would add to his weight.
In addition to those things that we have been learning to balance throughout the year, several of Little Man's doctors believe he has started having partial seizures. At this point, they aren't exactly dangerous, but rather something that we are aware of and monitoring closely. Another section in our medical binder.
Several months ago, Little Man chipped his front tooth almost all the way down to the nerve. It was not only very painful, but because of his sensory issues, getting it repaired was quite traumatic. As I laid across him to help hold his arms and legs down, I had to choke back the tears. "Your life has been SO unfair. God, this is NOT fair. Why do You allow this?" I thought and prayed. There is nothing that is easy for Little Man. It seems that almost each week brings some kind of new challenge. Many people meet Little Man and remark, "You are a very lucky little boy, do you know that?" I try to respond politely, but in my heart I know "the hand he has been dealt" and what a fighter he is. There is more strength and determination in his little finger than in most adults, I think. He has been challenged in literally every aspect of life- physically, mentally, emotionally, relationally. He has known the life of an orphan and the stress of being taken from the only home he ever knew to a completely new country.
I am amazed at the little boy God has given us. There are days that our new life is all so overwhelming that I become easily frustrated, but even so, it is difficult to not see God's fingerprints on the whole thing when I take a step back to see the whole picture. We have seen His faithfulness emotionally as He gives us the rest and insight we need to parent Little Man. He has continued to provide financially for all of these extra expenses, despite the days we are overwhelmed at the numbers. He has taught us perseverance and love. He has taught Baby Girl how to love even when it is difficult. We have seen Him teach Little Man self-control and patience and love and true joy.
Did you know that Little Man didn't always like being tickled? Every time we would tickle him, he would force a laugh because that is what he assumed he was supposed to do after watching Baby Girl. But today, if we reach out and tickle his sweet neck, he will throw his head back, mouth wide open and laugh with complete abandon. What a precious picture of the transformation God has made in all of our hearts. The ability to trust our security into His hands, tilt our head back and laugh.
What a great Father we have.
Subscribe to:
Posts (Atom)